Tuesday, August 4, 2009

Still Waiting....

So, the plan was for Lucas' counts to be high enough for him to have his stem cell harvest sometime the beginning of this week. Well, his counts are still at .1 which means we will be in this hospital room for at least another week. He contracted a bacterial infection that he is currently on antibiotics for and they think that's the reason his counts are not soaring. So, we wait. Lucas has been doing well as long as mommy is holding him. He seems to be fussy when I lay him down so naturally I've been holding him a lot. He is getting so big. Yesterday for the first time I noticed that he can now sit up on his own. This is great progress considering how weak his neck muscles were after surgery. He was like a new born again with a floppy head. He's really doing well and the physical therapist is very happy with his progress. I'm so proud of him for how well he's doing. I'm starting to get a little nervous about Kaden starting school on the 20th. He will need a lot of our attention with school work, activities, etc. and I don't want to downplay the importance of being there for him. Also, we registered both he and Jonas in soccer before all of this stuff happened and I'm on the fence on whether or not we should keep them in? Practices and games start soon and they are held during the week at 6:00 pm which basically means Aaron will miss everything and I don't know how much I want Lucas out and around other people. The boys have been looking forward to it but under the current circumstances they might have to wait until next year. Why can't they just do them on Saturdays like last year? It would be so much easier. Oh well. I can't really complain about stuff as frivolous as that when I feel so blessed that Lucas is handling everything so well. We are so grateful that he hasn't had any serious complications yet. (Quick, someone get me some wood to knock on.) Well, I will send an update when changes start to happen. As for now we are just hanging out until his poopies get back to normal and his counts start to rise. Thanks for taking the time to read our updates. It means so much to us that you all care so much!!

Love, Shannon

P.S. Aaron, you are the greatest husband ever. Thanks for everything you do to make my life easier. You are so thoughtful and I love you!!


  1. Shannon, I am sure you are a great mom and Aaron is a great father. Do not take on more than you can handle. There will be other years for your older sons to play soccor. They will understand when they get older. Right now, I know you do not want a to miss out on a single second with Lucas. Continue trying to spend special time with Kaden and Jonas. Perhaps there is a Saturday Karate Class that they can participate in... You both need your energy. You are in my thoughts and prayers everyday! However, do what you feel is right for your family. You guys know best.

  2. As with every decision, just pray about it. I know life is a hard balance right now ... if it comes down to them really wanting to play, and you feel good about it, rely on the support around you. As such, I know they don't know us, but we'd be happy to help in the times that your hands are full. Do what you can and let others help. We hope to see you again soon. :)
    All our love,
    The Huish's

  3. Glad Lucas is doing so well! I'd be happy to get your kids to and from soccer if need be. Just let me know. Do you still have my number?

  4. He is getting sooo big! He's a cutie and looks like he's hanging in there! As always we're always thinking of you guys!