Bawling, Barfing, and Bald....

Well, the past few days have been a little unpleasant. Don't get me wrong, being home has been wonderful. However, Lucas has been really fussy and has had a hard time keeping anything down. I thought that he would be happy and eat like the last time we came home after his first round of chemo. Well, I'm lucky to get him to drink one feeding a day out of his bottle. The rest I have to put down the feeding tube just to have him puke it up. He's on his medications, however, I just barely got his Zofran for nausea at 10:00 tonight from the home health care pharmacy. There are issues with our insurance needing pre-authorization for this medication and so we have been unsuccessful in getting it from our local pharmacy and I will have to call them in the morning to find out what is going on. I'm worried he is dehydrated because today he slept most of the day and just laid there when he was awake. Hopefully tomorrow will be a better day. Oh and before I forget, Aaron shaved Lucas' head yesterday. We'll post a picture soon. It's been nice being home and having some kind of normalcy again. We had our friends the Huish's come by with some brownies tonight and it was so great to visit with them. They recently lost their 6 year old daughter Sadie to a brain tumor and are such and inspiration to Aaron and I. What a sweet family. I'm so humbled at how supportive they are to us amongst their own trials at this time. I'm so grateful to have friends who love us and are so sincere when they say they want to help in any way. Lucas goes back to Primary Children's on Wednesday to start his next round of chemo. Hopefully we will only be there a few days. And might I add that I absolutely love the staff there. Lucas was scheduled to be admitted on Thursday and I expressed my disappointment in missing out on Kaden first day of school. Well, being the awesome people that they are they moved around the schedule and were able to get us in a day early. This way I can come in and do all of the admit papers and then my mom is planning on coming to the hospital that night so that I can go home and get Kaden ready for school on Thursday morning. Then I will come back to the hospital Thursday night and be with Lucas while he finished his chemo. It will work out to be a win win for everyone.

Shannon