Tuesday, July 7, 2009

Oh Man...Not the Feeding Tube!!!

Yes, you heard it right folks. Lucas inherited many things from his mother which I am proud of. Unfortunately, my stubbornness has not been benefiting him here in the hospital. He refuses to eat and so therefore had to have a feeding tube inserted yesterday. Then, if that wasn't bad enough, he ripped it out while rubbing his nose this morning. Guess who got to put it back in? That's right, nurse Shannon to the rescue. They said I need to know how to do it in case he yanks it out at home. It was not pleasant. I'm supposed to be there to comfort him. The nurses are supposed to be the bad guys. But I must say, he did sleep pretty good last night. He can now received his oral meds through the feeding tube so they don't have to wake him up. His rash seems to be getting better. We still haven't heard from the lab as to what caused it. Dr. Brugger's in oncology thinks it might have been from one of the chemo drugs called Methotrexate. She says he has tolerated his first round of chemo surprisingly well. Let's just hope it stays that way. I know that each round you receive gets harder and harder. It's just not fair. Little babies aren't supposed to be stuck in a hospital crib with tubes and wires hanging all over them while drinking formula from a large syringe. He should be sitting up and playing with toys, rolling around with his brothers, and experimenting with all new fun food tastes. But for whatever reason, this is his earthly experience at this time and we are just trying to make the best of it. It has been such a great couple of days. I have made some new friends who have given me so much hope and are full of positivity. I know that Heavenly Father has led me to these angels on earth to help me get through this most difficult time. It's so wonderful to have support and to talk to other mothers who have had similar experiences. I am also so overwhelmed with the generosity of everyone. You all hold a special place in our hearts and we will be forever grateful.


  1. It is good to hear little bits of good news. Thanks for the update.
    Love, Bishop Barney

  2. My Name is Tamara! I was one of the Mom's at the hospital the day that he had his MRI. My daughter was also having an MRI. Your little guy is so... cute. I found your blog through The Huish family blog. Sitting in the hospital that day I was hoping I could find out how this little guy is doing. Sounds like all is going well at this point. Know that he will be in my thoughts and prayers. You have amazing strength. We cannot make it through trials with out the gospel. I have come to that conclusion with the trials we have had with our daughters health problems. One bit of advice that I wish that I would have done more of? Have time for yourself everyday. It is so... important. Why I say that is I didn't do it and I have had health problems due to being to stressed out.If that makes since. Good luck I will pray for your family. We are all brothers in sisters. Nothing has been found wrong with my daughter, but still has stomach pain. I feel the only thing that has helped her is prayer! I have felt them from everyone. Good luck. I am excited to follow his progress. We are lucky to have the gospel that's all I can say!!!


  3. Shannon,
    It was so good to see you and sweet Lucas yesterday! I am so glad everything is going well so far. You are such an inspiration to Ty and I. I always feel like I have learned something new after talking to you and I have a better perspective on life. Seriously if there is anything I can do to help in any way let us know and hopefully we can go on a date night next week. We love you guys and have you in our prayers every day. I know the Lord is mindful of you and your family.