Tuesday, July 7, 2009
Oh Man...Not the Feeding Tube!!!
Yes, you heard it right folks. Lucas inherited many things from his mother which I am proud of. Unfortunately, my stubbornness has not been benefiting him here in the hospital. He refuses to eat and so therefore had to have a feeding tube inserted yesterday. Then, if that wasn't bad enough, he ripped it out while rubbing his nose this morning. Guess who got to put it back in? That's right, nurse Shannon to the rescue. They said I need to know how to do it in case he yanks it out at home. It was not pleasant. I'm supposed to be there to comfort him. The nurses are supposed to be the bad guys. But I must say, he did sleep pretty good last night. He can now received his oral meds through the feeding tube so they don't have to wake him up. His rash seems to be getting better. We still haven't heard from the lab as to what caused it. Dr. Brugger's in oncology thinks it might have been from one of the chemo drugs called Methotrexate. She says he has tolerated his first round of chemo surprisingly well. Let's just hope it stays that way. I know that each round you receive gets harder and harder. It's just not fair. Little babies aren't supposed to be stuck in a hospital crib with tubes and wires hanging all over them while drinking formula from a large syringe. He should be sitting up and playing with toys, rolling around with his brothers, and experimenting with all new fun food tastes. But for whatever reason, this is his earthly experience at this time and we are just trying to make the best of it. It has been such a great couple of days. I have made some new friends who have given me so much hope and are full of positivity. I know that Heavenly Father has led me to these angels on earth to help me get through this most difficult time. It's so wonderful to have support and to talk to other mothers who have had similar experiences. I am also so overwhelmed with the generosity of everyone. You all hold a special place in our hearts and we will be forever grateful.