Lucas has no immune system. His white blood cell counts as of this morning are at .1 which means he is extremely susceptible to infection. Considering he shouldn't be feeling well at all he is still happy. Babies are amazing. They are so resilient and bounce back so quickly. Something cool happened today. He was moving his right arm ever so slightly at the elbow which is an improvement. He hasn't been able to move it in over a month. We are hopeful that with time he will be able to regain most of the movement in his right arm. All of this week the nurses have been showing me how to take care of his medical needs at home such as his feeding tube, central line, shots, etc. It's been good for me to learn these things hands on. I am a visual learner and although I appreciate all of the handouts I have to read, I will feel more comfortable if I leave with some experience. I love the staff here. The nurses are amazing and they all adore Lucas. Aaron and I came home to be with the boys this weekend and I was so excited to see them. I miss them so much and look forward to having some fun with them. It's good for us to take our minds off of the hospital routine once in awhile. Well, Lucas will be in the hospital until his counts reach at least 500. I have a hunch we will be there next week as well. Unfortunately there is no set schedule with chemo recovery. Every child responds differently and they can't start the next round until his counts are up to around 1500. It would be nice to have him home but I understand that it's safer for him at the hospital right now. Until then we are making the best of it!!
Thursday, July 9, 2009
Still happy through it all
Lucas has no immune system. His white blood cell counts as of this morning are at .1 which means he is extremely susceptible to infection. Considering he shouldn't be feeling well at all he is still happy. Babies are amazing. They are so resilient and bounce back so quickly. Something cool happened today. He was moving his right arm ever so slightly at the elbow which is an improvement. He hasn't been able to move it in over a month. We are hopeful that with time he will be able to regain most of the movement in his right arm. All of this week the nurses have been showing me how to take care of his medical needs at home such as his feeding tube, central line, shots, etc. It's been good for me to learn these things hands on. I am a visual learner and although I appreciate all of the handouts I have to read, I will feel more comfortable if I leave with some experience. I love the staff here. The nurses are amazing and they all adore Lucas. Aaron and I came home to be with the boys this weekend and I was so excited to see them. I miss them so much and look forward to having some fun with them. It's good for us to take our minds off of the hospital routine once in awhile. Well, Lucas will be in the hospital until his counts reach at least 500. I have a hunch we will be there next week as well. Unfortunately there is no set schedule with chemo recovery. Every child responds differently and they can't start the next round until his counts are up to around 1500. It would be nice to have him home but I understand that it's safer for him at the hospital right now. Until then we are making the best of it!!
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Shannon it's so good to see him smiling I had fun hanging out with Trish and your boys today the kids had a lot of fun Kaylee and Jonas got along really well. They are such sweet hearts.
ReplyDeleteHe sure is adorable!! I can't imagine what you are going through. Just wanted you to know that there are prayers being said for you and your sweet baby by another stranger from the facebook group who now has a place in my heart named Lucas. =) Take care!!
ReplyDeleteWe love you guys! And we love baby Lucas!
ReplyDeleteI'm so glad he's so happy despite everything! he's such a sweetie! I hope you have a fun weekend home with your other two boys!
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